Thursday, January 16, 2020

Real Talk: Parenting + Autism

My oldest is loud, boisterous, energetic, dramatic, spastic, and silly about 99.7% of the time.
She’s rarely ever quiet... unless she’s asleep or not feeling well.

I love that about her.

She makes me laugh constantly - even when I’m mad or frustrated with her, I can’t help but laugh at some of the silly things she does or says.
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My youngest has sensory issues.
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Tonight I experienced a real LIGHT BULB Moment:

Her loud, overly-dramatic, hyper-activity - more often than not - triggers his sensory issues.
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No wonder life seems so stressful and chaotic when we’re all home together.
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When they leave for their dads’ - I tend to hole up in my bedroom to decompress and sleep as much as I can.  I didn’t understand why I felt so depleted or why I could literally stay in bed all. dang. day. on the days they weren’t here if I didn’t have work or school stuff to get me out of bed.  I didn’t understand any of that until tonight.

What started as a mildly stressful evening quickly escalated to an uncomfortable tension that ended with all of us being sent to separate corners of the house for a few minutes to regroup and decompress.

A Positive that came from it:
I opted to turn it all into a teachable moment.
I had her look up “sensory issues” and “autism”.
I made her read what she found out loud and then asked her what she took away from what she had just read.  I asked her to apply it to her and her brother.

I shared with her some of the thought processes and constant worries I struggle with privately.
- Daily worries about his nutrition.
- Daily worries about his safety.
- Daily worries about his education and his future.

I told her about the process I started months ago of trying to get her brother qualified for other therapies outside of school to increase his chances of living and leading a normal life.
- Endless phone calls, emails, and applications.
- Incessant research for information and resources.
- The constant worry of: Am I doing the right thing? Am I doing enough?
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Tonight could have easily been a train wreck.
We all could have gone to bed angry, hurt, frustrated, and sad.
But because I was able to share some of my biggest fears, concerns, and failures as a mother with my daughter, things were diffused from a place of utter frustration to a place of understanding.
I’m blessed that she was open to listening.  She truly wanted to gain a better understanding about her brother’s issues.

I’ve said it before and I’ll say it again:
Mom-ing ain’t easy, but I am feeling so lucky that I get to be their Mom.